The glow weave shirt, the nice pants and boots, the teeth brushed thrice. We're going to the surgeon today...
again...
fuck...
***
It's numbing, sitting here in the waiting room, ruminating over the fact that I'm here again. After 18 months, I'm back to square one. I've feel as though I have not advanced a centimeter. I've merely turned a circle.
I'm reminded of a bee I saw a few days ago whilst out for a bike ride with my daughter. It was turning a circle on the kerbside. I guess it must have slapped into a passing car and, somehow, survived the impact. There it was, turning this futile circle, probably brain damaged, unable to do anything else. I feel a sense of camaraderie with that bee in this moment.
Futility. Damage.
I feel I've reached a point where I feel as though things seem irreparable, and no amount of surgical 'tinkering' will get me back to that state where everything just worked.
I fear sleep because every time I lay down, I wonder if this is going to be the night when I drown in my own fluids?
I fear speech because of the crass stares I get when my voice begins to fail & it looks as if I'm going to throw up. I see how they look at me. It's a mix of incredulity and disgust. They take a step or two back, fearful of being in the firing line.
I look at food with ambivalence because I can't taste it, or smell it. I can't smell a flower, or register the scent of Chanel on my wife's skin. There's no olfactory pleasure - just an occasional 'meaty' nothing taste on my tongue that occasionally hints at something rotting.
I wonder if that's me? Am I rotting?
It's a curious thought, isn't it.
The waiting room is full. It's a nice space, if a little full. There are lots of people around me.
I wonder if they're warring with their own minds, the way I am right now?
***
Impairment of the right inferior constrictor and laryngeal muscles related to a neuroma...
Recent increase in dysphagia...
A tendency towards micropenetration/aspiration events...
For modified barium swallow with speech pathology...
***
More study. More intelligence gathering. More planning.
For what?
DFA.
:( Sorry to hear about your troubles Dean. Hoping they figure something out soon.
ReplyDeleteFk, Dean. I don't know what to say. I'm sorry this is happening and I hope you can get the right advice from the right doctor...
ReplyDelete