I'm back with a post as part of my writers' group August blog chain challenge and, this month, the topic put to us was a question - Why is it important to be creative?
At first glance, the question appears fairly easy to answer doesn't it.
However, I struggled to come up with an adequate answer and, for the longest time, I couldn't figure out why. It eventually struck me that I was trying to answer the question by looking outward - as though trying to impart reasons why anyone should be creative. But, that's the wrong way to tackle it. Creativity is a very personal thing and it can take so many different forms. The relationship one has with creativity is unique. It goes then, that any consideration of its importance requires that one look inward, rather than outward. So why is creativity important to me?
My love of writing began at an early age. I've often said my Grade 3 primary school teacher, Mrs. Furnell, was the individual who unlocked my creative streak during the creative writing sessions she used to run in class. Ever since then, my desire to create, to tell stories has been insatiable. It has become as much a part of me as breathing or walking.
As a Registered Nurse, having practiced for over 20 years in many clinical areas, I have been witness to the extremes of the human condition. A lot of these experiences have been positive - like Nursing newborns who need just a little bit of help at the beginning of their lives or Nursing various bumps and scrapes children have sustained on the sporting field or in the back yard. Things that can be fixed relatively easily. Through the tears and the worry of the patient and their family, there are often smiles and laughter and comradeship. Plenty can be fixed with a Zooper Dooper icy pole.
There have been a lot of other experiences though - like being present at traumatic presentations in the ED, like motor vehicle accidents, violent assaults - sometimes involving weapons, drug overdoses. Or in the ICU - Nursing complex disease processes, the extension of those ED presentations, children who have acquired virulent illnesses like meningococcal sespsis or have been diagnosed with cancer. Many of these cases survive and recover. Many of them do not. There have been catastrophic outcomes. There has been death.
These experiences imprint on you and they do affect you.
Creativity in the form of writing has been a means to decompress, to escape the accumulated muck of that side of my life and engage with an art that is completely separate. Sometimes, I have written down vestiges of those clinical experiences simply as a means of trying to make sense of them, to remove their subjective effects from my mind and see them as objective experiences, which I can address, deconstruct and move on from. Sometimes, those experiences have found their way into my writing, which has been therapeutic in itself.
It's ironic isn't it. I've credited my Nursing as being an influence on my writing for this reason, but also because of the structure Nursing requires to practice effectively. Nursing involves an adherence to inquiry, to diagnosing, problem solving and crafting solutions. These tools are invaluable to me as writer as I sculpt stories using them in much the same way. So, while I write and create as a way to separate myself from my Nursing, my Nursing inevitably creeps across the fence.
Creativity is an antidote for a restless mind. I have a mind that is constantly working. I find it difficult to switch off. The world around me is such a vivid place and I often take in everything. I work it over, consider objects, smells, tastes, experiences. I ask myself questions, analyze, ponder. The noise in my head can, sometimes be deafening and it can be distressing.
Writing is a means for me to unpack my mind and get things out so that I can become an observer of ideas, rather than a participant in them - does that make sense? Having a creative process, a method if you will, that is structured and coherent allows me to work ideas into a pre-existing project or catalog them for a future one. I've come to regard even the most disparate ideas as valuable. They are as tangible to me as a flower or a leaf, a Star Wars figurine or a piece of fruit.
Creativity, for me, is a means of maintaining mental well being as much as it is a satisfying pursuit of story telling.
I'm sure I could explore other reasons why it is important, for me, to be creative but I think these two top the list. They represent the two greatest influences on me as a writer and also as a person.
So, what about you? Why is it important for you to be creative? Let me know in the comments.
DFA.
Showing posts with label anxiety. Show all posts
Showing posts with label anxiety. Show all posts
Monday, August 13, 2018
Monday, April 23, 2018
Anxiety At The Edge.
I'm back here.
Again.
Again???
There has been a disturbing turn in a direction with my health - one that seems inconceivable to me after the past two years of multiple surgeries on my throat.
I was in a place towards the end of last year, where it seemed as though we had found a solution to the choking problems I was experiencing. I had begun receiving a series of injections of botulinum toxin - (yeah that botulinum toxin) - in an effort to paralyze a dysfunctional region of my throat that was randomly going into spasm during the act of speech and swallowing.
After what was a hopeful response, I've had a major setback. My dysfunctional throat, which seems determined to kill me, is not responding to the treatment. To be specific, the injections were designed to paralyze a ring of muscle at the top of my throat - just under the vocal cords - called the cricopharyngeal ring.
In its normal state, that ring of muscle is supposed to relax and contract rhythmically with the act of swallowing, allowing food to pass safely into the oesophagus. During speech, it is supposed to contract and stay contracted in order to facilitate airflow over the vocal cords.
In me, the cricopharyngeal ring spasms uncontrollably during swallowing and speaking, leaving me at risk of food and liquid regurgitating into my airway and lungs. Food and fluid on the lungs is not a good thing.
Basically - you can drown. And I have come close a few times.
This all relates back to the dysfunctional nerve supply in my neck that precipitated the surgery I had on my vocal cords in 2016 and 2017. Initially, we believed that only my vocal cords were affected. It turns out the pharynx is involved as well.
So where to?
I can't believe I'm saying this - much less typing it - but I'm going back into hospital for more surgery.
The only credible path for me to take now is to undergo a procedure in which the cricopharyngeal ring, along with part of the pharynx, will be cut in order to neutralize the muscle completely and permanently. By severing the muscle it will be rendered useless and will prevent the pharynx from going into spasm during the act of swallowing and speech. It will also widen the pharynx at the top of my oesophagus, technically making the passage of food easier once the tongue propels food and fluid into it. On paper, it appears straight forward.
Right?
The following diagram sets out the procedure in a fairly sterile manner. It was provided to me by my surgeon yesterday.
Again.
Again???
There has been a disturbing turn in a direction with my health - one that seems inconceivable to me after the past two years of multiple surgeries on my throat.
I was in a place towards the end of last year, where it seemed as though we had found a solution to the choking problems I was experiencing. I had begun receiving a series of injections of botulinum toxin - (yeah that botulinum toxin) - in an effort to paralyze a dysfunctional region of my throat that was randomly going into spasm during the act of speech and swallowing.
After what was a hopeful response, I've had a major setback. My dysfunctional throat, which seems determined to kill me, is not responding to the treatment. To be specific, the injections were designed to paralyze a ring of muscle at the top of my throat - just under the vocal cords - called the cricopharyngeal ring.
In its normal state, that ring of muscle is supposed to relax and contract rhythmically with the act of swallowing, allowing food to pass safely into the oesophagus. During speech, it is supposed to contract and stay contracted in order to facilitate airflow over the vocal cords.
In me, the cricopharyngeal ring spasms uncontrollably during swallowing and speaking, leaving me at risk of food and liquid regurgitating into my airway and lungs. Food and fluid on the lungs is not a good thing.
Basically - you can drown. And I have come close a few times.
This all relates back to the dysfunctional nerve supply in my neck that precipitated the surgery I had on my vocal cords in 2016 and 2017. Initially, we believed that only my vocal cords were affected. It turns out the pharynx is involved as well.
So where to?
I can't believe I'm saying this - much less typing it - but I'm going back into hospital for more surgery.
The only credible path for me to take now is to undergo a procedure in which the cricopharyngeal ring, along with part of the pharynx, will be cut in order to neutralize the muscle completely and permanently. By severing the muscle it will be rendered useless and will prevent the pharynx from going into spasm during the act of swallowing and speech. It will also widen the pharynx at the top of my oesophagus, technically making the passage of food easier once the tongue propels food and fluid into it. On paper, it appears straight forward.
Right?
The following diagram sets out the procedure in a fairly sterile manner. It was provided to me by my surgeon yesterday.
Cricopharyngeal Myotomy (image credit OSEO.org)
To access the structures of the neck, they'll create an incision down the left side of my neck, then retract the muscles, veins, arteries and nerves around my pharynx in order to reveal the cricopharyngeal muscle. During the procedure, they'll need to sacrifice an artery and vein that supply my thyroid gland, but these are considered redundant vessels as the thyroid gland is generously supplied by multiple vessels and is quite a vascular gland. The sacrificed vein and artery will be clipped with special titanium clips (so that'll be fancy). Once the cricopharyngeal ring and pharynx are identified, the surgeon will divide (or cut) the ring down to the pharyngeal wall and extend that incision down the pharynx about 5cm. The pharynx itself will then herniate through the incision (see Diagram C) which is the objective - to create a widening of pharynx that will allow food and fluid to pass freely into the oesophagus without the risk of the muscle going into spasm. The surgeon will close up and I'll have a stay in hospital to recover. Aside from a few technical additions to the procedure, that's basically it.
So, how am I feeling about this?
To be honest, I'm too numb to be frightened at the moment. After multiple procedures and attempts at solving this problem, it's like Groundhog Day to be back here again. I'm exhausted. I have been living day to day (and night) in a state of silent, anticipatory terror. Every time I sit down to a meal, I wonder whether this will be the meal that will cause my throat to seize completely and choke me to death. Every time I hold what little conversation I can hold, I wonder whether the mere act of speech will cause my throat to go into spasm and choke me to death. I said earlier I have come close a number of times. The most frightening occasions have occurred when I have been asleep.
I am frightened at the prospect of this surgery and I know that fear will become more acute as I approach the day - May 4th by the way. There's an old maxim among Nurses that goes "A little bit of knowledge is dangerous." Having entered my 23rd year as a Nurse, the irony of that maxim is not lost on me. I know what's involved. I know the risks. This surgery is delicate. It's a blessing and curse.
I also know under the care of a brilliant surgeon and his team are among the best I have encountered - both as a Nurse and as a patient. I'll be in a facility of which I am familiar. There won't be a lot of strangers there. I trust them implicitly. So, there's a flip side that gives me a little to feel good about.
After two years, I feel like I'm in a no-win situation. I really need to have a win.
DFA.
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Tuesday, November 7, 2017
An Emotional Entropy.
I experience periods of self loathing at least ten times a day.
Sometimes, they occur for no other reason than an autonomous biological chemistry in my mind. Sometimes, they are a product of my own idiocy - or inadequacy - or both.
I don't set out to be an arsehole. I know, deep down, that's not me.
But things in this world scare me. Everything I thought I knew about it is slowly and surely deconstructing.
It's not enough for me to accept things as they are. I feel as though I have to challenge the orthodoxy, because I fear there is something inherently wrong with it. I fear it is out of control. I feel I need to stand apart from the group think.
But, when I walk into an unfamiliar room, engage with a stranger, question them...
It's bound to come undone and I know this - implicitly - before it even happens.
Yet I barrel forward anyway. Because, somewhere in the corridors of my mind - my conscience - I hold something that is well meaning. An important point of view. My attempt to question - mentally - is honorable.
The execution...?
I am an incompetent driver of this vehicle. And I know, even before it happens, that only one thing *can* happen.
I will crash and it will be destructive.
The older I get, the less certain I am of everything. I realize know very little. My thinking is limited. I am constantly plagued with doubt.
I wish I were different. I wish I had the confidence, the nimbleness of mind to be more considerate in my discourse. Respectful.
I am governed by an experience - a series of experiences - I wish I'd never had.
There's a word for that, for this. For me...
Entropy.
Is that it? Who knows. I'm too dumb to know myself.
Sometimes, they occur for no other reason than an autonomous biological chemistry in my mind. Sometimes, they are a product of my own idiocy - or inadequacy - or both.
I don't set out to be an arsehole. I know, deep down, that's not me.
But things in this world scare me. Everything I thought I knew about it is slowly and surely deconstructing.
It's not enough for me to accept things as they are. I feel as though I have to challenge the orthodoxy, because I fear there is something inherently wrong with it. I fear it is out of control. I feel I need to stand apart from the group think.
But, when I walk into an unfamiliar room, engage with a stranger, question them...
It's bound to come undone and I know this - implicitly - before it even happens.
Yet I barrel forward anyway. Because, somewhere in the corridors of my mind - my conscience - I hold something that is well meaning. An important point of view. My attempt to question - mentally - is honorable.
The execution...?
I am an incompetent driver of this vehicle. And I know, even before it happens, that only one thing *can* happen.
I will crash and it will be destructive.
The older I get, the less certain I am of everything. I realize know very little. My thinking is limited. I am constantly plagued with doubt.
I wish I were different. I wish I had the confidence, the nimbleness of mind to be more considerate in my discourse. Respectful.
I am governed by an experience - a series of experiences - I wish I'd never had.
There's a word for that, for this. For me...
Entropy.
Is that it? Who knows. I'm too dumb to know myself.
Monday, October 24, 2016
The Involuntary Pause - Misadventures In Writing & Other Things.
I wasn't feeling it today.
Maybe it was because I'd indulged a little more than I'd planned to last night at the Pub when I was catching up with family. Maybe it was because it was such a lovely morning this morning and I found myself tending to my garden and lawns while listening to an ever enlightening episode of the Osher Günsberg podcast.
Whatever it was - I just couldn't engage my creative impulse today and, despite the eventual two hours I spent at my computer, my output wasn't good. I think I stared at my screen more than I did input anything of value. I'm struggling with the challenge of bringing two people together in a way that is gentle and convincing - and not soppy. So far, it has involved my protagonist, Hayden Luschcombe, helping my co-protagonist, Isabelle Sampi, with a blocked fuel line in her car and her showing him her bakehouse that she pretty much built herself. There's gotta be romance in there somewhere right.
It's a long story...
...And it's not easy.
Traditionally, I've been really hard on myself and overly criticized myself for not being productive. It's sonething that has caused me considerable distress - unnecessary distress. But I've slowly learned to accept that, sometimes, I'm simply not going to be able to tap into whatever it is that allows me to write freely and easily. When that happens, I've given myself permission to step away and disengage and it actually helps a lot. Of course, as with any learned behaviour - particularly those that have been learned over a long period of time - it's not easy to shake the anxiety and the tendency to be self critical. It takes effort to deprogram yourself and that can be pretty tiring. As I sit and I type this however, I'm okay...
...I think.
To contrast this with something completely opposite, something ratrathgroynd shaking has happened with The Recipient in the past couple of weeks. Back at the beginning of this month, my publisher wrote to advise me that The Recipient had been accepted for a Goodreads promotion that would see it be featured prominently at Goodreads as well as being included in a subscriber email mail-out.
Well, as the result of this promotion, The Recipient embarked on a rapid climb up the Amazon charts, peaking at a ranking of 735 a couple of weeks ago (out of several million titles) and it entered in the Top 100 across several fiction categories. It's since settled back into the mid 10,000 range as I write this but, it's selling at least a half dozen copies daily rather than say one or two copies a week. It's safe to say that I've never experienced anything like this and I'm kind of unsure how to see this. Further, I've just been informed that Amazon itself has selected The Recipient for its Kindle Monthly Deal mailout for November which has the potential to continue this run of high sales through its high visibility promotion. This includes prominent placement across the Amazon site as well as its social network.
In a word, I'm flabbergasted.
In the six years since my first novel, The Hambledown Dream, was published, I haven't had this level of exposure nor sales and it's a little hard to believe it's actually happening.
It's all a little bit of yin and yang today (is that right?)
Have you experienced something similar this past week? Let me know in the comments section below.
DFA.
Maybe it was because I'd indulged a little more than I'd planned to last night at the Pub when I was catching up with family. Maybe it was because it was such a lovely morning this morning and I found myself tending to my garden and lawns while listening to an ever enlightening episode of the Osher Günsberg podcast.
Whatever it was - I just couldn't engage my creative impulse today and, despite the eventual two hours I spent at my computer, my output wasn't good. I think I stared at my screen more than I did input anything of value. I'm struggling with the challenge of bringing two people together in a way that is gentle and convincing - and not soppy. So far, it has involved my protagonist, Hayden Luschcombe, helping my co-protagonist, Isabelle Sampi, with a blocked fuel line in her car and her showing him her bakehouse that she pretty much built herself. There's gotta be romance in there somewhere right.
It's a long story...
...And it's not easy.
Traditionally, I've been really hard on myself and overly criticized myself for not being productive. It's sonething that has caused me considerable distress - unnecessary distress. But I've slowly learned to accept that, sometimes, I'm simply not going to be able to tap into whatever it is that allows me to write freely and easily. When that happens, I've given myself permission to step away and disengage and it actually helps a lot. Of course, as with any learned behaviour - particularly those that have been learned over a long period of time - it's not easy to shake the anxiety and the tendency to be self critical. It takes effort to deprogram yourself and that can be pretty tiring. As I sit and I type this however, I'm okay...
...I think.
To contrast this with something completely opposite, something ratrathgroynd shaking has happened with The Recipient in the past couple of weeks. Back at the beginning of this month, my publisher wrote to advise me that The Recipient had been accepted for a Goodreads promotion that would see it be featured prominently at Goodreads as well as being included in a subscriber email mail-out.
Well, as the result of this promotion, The Recipient embarked on a rapid climb up the Amazon charts, peaking at a ranking of 735 a couple of weeks ago (out of several million titles) and it entered in the Top 100 across several fiction categories. It's since settled back into the mid 10,000 range as I write this but, it's selling at least a half dozen copies daily rather than say one or two copies a week. It's safe to say that I've never experienced anything like this and I'm kind of unsure how to see this. Further, I've just been informed that Amazon itself has selected The Recipient for its Kindle Monthly Deal mailout for November which has the potential to continue this run of high sales through its high visibility promotion. This includes prominent placement across the Amazon site as well as its social network.
In a word, I'm flabbergasted.
In the six years since my first novel, The Hambledown Dream, was published, I haven't had this level of exposure nor sales and it's a little hard to believe it's actually happening.
It's all a little bit of yin and yang today (is that right?)
Have you experienced something similar this past week? Let me know in the comments section below.
DFA.
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Thursday, July 7, 2016
State Of Play.
So it's been six weeks.
Six weeks since the surgery that turned my life sideways. I was going to say upside down, but that sorta seems overly dramatic and not altogether justified.
Or maybe it's just me being uncomfortable with the significance of all of this.
So where am I at?
I still can't talk with any decent quality. I'm good for a few rasping sentences but I'm stuffed after about an hour a day and then I just can't make it work. Which presents a problem because, before all of this surgery, I committed to an author talk at a suburban library here in Adelaide later this month. I still want to do it so I've been resting my voice as much as is humanly possible and I've been working on my exercises three and four times a day in order to stretch the muscles in my throat because I really want to do it. I feel as though I need to do it.
My throat hurts like a mother f***er - all the time.
I saw my surgeon earlier this week and he passed his camera down into the area where he operated. While it's healing, it's become inflamed and hyper sensitive due to some reflux I've developed. I'm now popping Somac daily (a protein pump inhibitor) to address the reflux and I'm swallowing Gaviscon four times a day. The Gaviscon is a thick cement like liquid - that tastes awful - which coats my throat and protects it against acids my natural desire to actually fucking speak.
It's ironic that the exercises I'm supposed to be doing are actually contributing to all of this.
Oh - and I think I'm addicted to coedine.
I'm popping Panadiene like a junkie - well it feels that way - even though I'm actually sticking to the requisite recommended dosing of 6 hourly. The pain has localized itself to my throat, in the vicinity of my voice box - what's left of it and it feels like razor blades everytime I so much as swallow my own saliva. You would be amazed just how active the tissues and muscles of the throat are, even when you aren't doing anything. It's nigh on impossible to get any respite from it. And, of course, as all knowledgeable persons would know, Panadiene plays havoc with one's bowels. I am so constipated that I've added several classifications to the Bristol Stool Scale. Our toilet has become the equivalent of a missile testing range when I'm in there. It's hazardous.
I hate eating.
I don't enjoy food at all right now. Between the pain from my still healing palate and my throat, meals are just a chore. It all tastes like metal and flesh. I approach the act of swallowing solid food with dread so much so that I'm starting to avoid them altogether.
But it has done wonders for my waist line. I've dropped 5kgs in the past month and I'm still shedding.
Suck on that Michelle Bridges!!
I'm back at work.
Because I do night duty, I can avoid talking for the most part outside of handover and introductions to my patients. They have been very understanding and have kinda dug having a largely mute ICU Nurse caring for them. My colleagues have been hugely supportive and somehow make it work so that I can work.
But I'm sinking into a state of functioning depression.
I want my life back. Beyond waking and doing what I have to do to make it through each day, I'm not motivated. I am trying to write. I've largely mapped out a new novel but it all feels like a chore right now and I don't enjoy it and that's dangerous for a writer. I don't get out much. I clock watch a lot, waiting for the next time where I can pop some pills or drink some cement to ease my dysfunctional throat. It all weighs heavily on my mental well being. At the moment, life consists of just getting through and I want to do more than just fucking get through...
You know...?
DFA.
Six weeks since the surgery that turned my life sideways. I was going to say upside down, but that sorta seems overly dramatic and not altogether justified.
Or maybe it's just me being uncomfortable with the significance of all of this.
So where am I at?
I still can't talk with any decent quality. I'm good for a few rasping sentences but I'm stuffed after about an hour a day and then I just can't make it work. Which presents a problem because, before all of this surgery, I committed to an author talk at a suburban library here in Adelaide later this month. I still want to do it so I've been resting my voice as much as is humanly possible and I've been working on my exercises three and four times a day in order to stretch the muscles in my throat because I really want to do it. I feel as though I need to do it.
(Week 3. Would you wanna kiss this??)
My throat hurts like a mother f***er - all the time.
I saw my surgeon earlier this week and he passed his camera down into the area where he operated. While it's healing, it's become inflamed and hyper sensitive due to some reflux I've developed. I'm now popping Somac daily (a protein pump inhibitor) to address the reflux and I'm swallowing Gaviscon four times a day. The Gaviscon is a thick cement like liquid - that tastes awful - which coats my throat and protects it against acids my natural desire to actually fucking speak.
It's ironic that the exercises I'm supposed to be doing are actually contributing to all of this.
Oh - and I think I'm addicted to coedine.
I'm popping Panadiene like a junkie - well it feels that way - even though I'm actually sticking to the requisite recommended dosing of 6 hourly. The pain has localized itself to my throat, in the vicinity of my voice box - what's left of it and it feels like razor blades everytime I so much as swallow my own saliva. You would be amazed just how active the tissues and muscles of the throat are, even when you aren't doing anything. It's nigh on impossible to get any respite from it. And, of course, as all knowledgeable persons would know, Panadiene plays havoc with one's bowels. I am so constipated that I've added several classifications to the Bristol Stool Scale. Our toilet has become the equivalent of a missile testing range when I'm in there. It's hazardous.
I hate eating.
I don't enjoy food at all right now. Between the pain from my still healing palate and my throat, meals are just a chore. It all tastes like metal and flesh. I approach the act of swallowing solid food with dread so much so that I'm starting to avoid them altogether.
But it has done wonders for my waist line. I've dropped 5kgs in the past month and I'm still shedding.
Suck on that Michelle Bridges!!
I'm back at work.
Because I do night duty, I can avoid talking for the most part outside of handover and introductions to my patients. They have been very understanding and have kinda dug having a largely mute ICU Nurse caring for them. My colleagues have been hugely supportive and somehow make it work so that I can work.
(Walhalla - where I want to set my new novel.)
But I'm sinking into a state of functioning depression.
I want my life back. Beyond waking and doing what I have to do to make it through each day, I'm not motivated. I am trying to write. I've largely mapped out a new novel but it all feels like a chore right now and I don't enjoy it and that's dangerous for a writer. I don't get out much. I clock watch a lot, waiting for the next time where I can pop some pills or drink some cement to ease my dysfunctional throat. It all weighs heavily on my mental well being. At the moment, life consists of just getting through and I want to do more than just fucking get through...
You know...?
DFA.
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Sunday, June 5, 2016
Isolation, Silence & Dysfunctional Fandom.
It's been a week since my surgery.
A long, slow, grinding week, characterized by constant pain, an inability to eat anything more substantial than liquids or pureès, an inability to form anything more than a few words that register above a whisper. I've spent long hours looking at the walls, wrestling with the most basic of decisions - (should I pick up that empty toilet roll tube off the floor so that the dog doesn't chew it - or no?)
I took a photo of the visible part of my throat last night. I wasn't sure whether I wanted to see it and I when I did see it I was sure that I didn't - and I wish I hadn't.
It is raw. It is mutilated. It is green! There is so much putrid slough in there that mere sight of it makes me want to gag. If only I could gag.
In short - I am thoroughly sick of myself.
I'll understand if you choose to vague out now because I know my misery can be interpreted as self indulgent. But I will say that blogging about this experience has gone some way in helping me cope with the situation.
And I will say that on Thursday, I had a slight bump in energy and motivation - enough that I took my dog Sam for a walk to the park and let him off to run around for a bit. Adelaide's parklands near my house are a wonderful open space, safe from traffic and just perfect for burning off some canine energy. Sam was, of course, as pleased as punch. The walk ruined me but I was glad I did it.
I also did some writing on Thursday. Not much - around two thousand words; but they are new words I've committed to a project I've tentatively called Walhalla - one that I've been trying to get going for a little while now. Again, my concentration collapsed after a few hours but, for a time their, it was really nice to just write something - to have some creativity flowing through me. I have only the vaguest idea of where this material will fit into an eventual story. That doesn't matter to me though. These things can be worked out later.
As I predicted, the pointy end of necessary human interaction is beginning to make itself felt and it is not encouraging. Of the few trips I've made to my local grocer this week, I've found them to be understanding without having to divulge the circumstances of my situation. Other places have regarded me with confusion, a latent suspicion and unabashed antipathy. One lady at the chemist the other day when I was trying to mouth the word tramadol, came right out and said, rather incredulously, "You can talk you know!"
A predictable ignorance.
The minute you hope for understanding, human nature comes in and shits all over it.
So I'm avoiding going out unless it's absolutely necessary. Soon, sadly, it is going to be necessary. I'm dreading that.
I think I'm done with pop culture. Looking through my social network feed this week, I've seen a number of spot fires raging around controversies within the Marvel and Star Wars universes and they are just so hack. Something about Captain America being a Nazi now and, shock horror, the forthcoming Rogue One film has to undergo some reshoots - like that never happens.
The pretentiousness of these hyper fans is really difficult to cope with and I feel as though there is an expectation on the part of some of them to engage in a war to justify some sort of defense of an ideology. It's fucking fiction! It's not key to human survival. Their consistent argument is that "my fandom is bigger than your fandom so your opinion has no validity!" I've encountered this personally in just the past week. It is confronting.
It's indicative to me that fandom is essentially broken and that maybe it is time to abandon certain franchises - *cough* Marvel *cough* that have already been twisted up in so many knots, the ability to ret conn them is virtually useless.
Further, I find that fans in my own beloved franchise have hitched themselves to it in sych a way that they have begun identifying themselves as "Star Wars" celebrities. That, because they flaunt their fandom as though it's some kind of penis symbol, they have assumed the right to be intertwined with the universe - almost as if they were in the fucking films themselves. It is annoying. Infuriating even.
I am trying to pay attention to the Federal Election campaign here currently because I like to think of myself as a responsible civic citizen and I want to take my vote seriously. But, I can't make sense of any of the arguments being put forward by the participating political parties. It's becoming lost in confusion and slogans. The only things the nation seems to have been talking about is the economy, superannuation, tax and jobs. Nothing about the arts. Nothing about social justice issues. Nothing about climate. We are a nation obsessed with money and the problems we face as a nation going forward require more than just money to address them.
But then I'm lost again.
Anyway, I have gone off on a major tangent. But it is illustrative of where my mind is at right now. I am unable to focus on anything for more than a short period of time before I am quickly distracted - then disinterested.
And I sit and look out the window.
There's a toilet roll tube on the top of the fence paling.
DFA.
A long, slow, grinding week, characterized by constant pain, an inability to eat anything more substantial than liquids or pureès, an inability to form anything more than a few words that register above a whisper. I've spent long hours looking at the walls, wrestling with the most basic of decisions - (should I pick up that empty toilet roll tube off the floor so that the dog doesn't chew it - or no?)
I took a photo of the visible part of my throat last night. I wasn't sure whether I wanted to see it and I when I did see it I was sure that I didn't - and I wish I hadn't.
It is raw. It is mutilated. It is green! There is so much putrid slough in there that mere sight of it makes me want to gag. If only I could gag.
In short - I am thoroughly sick of myself.
I'll understand if you choose to vague out now because I know my misery can be interpreted as self indulgent. But I will say that blogging about this experience has gone some way in helping me cope with the situation.
And I will say that on Thursday, I had a slight bump in energy and motivation - enough that I took my dog Sam for a walk to the park and let him off to run around for a bit. Adelaide's parklands near my house are a wonderful open space, safe from traffic and just perfect for burning off some canine energy. Sam was, of course, as pleased as punch. The walk ruined me but I was glad I did it.
I also did some writing on Thursday. Not much - around two thousand words; but they are new words I've committed to a project I've tentatively called Walhalla - one that I've been trying to get going for a little while now. Again, my concentration collapsed after a few hours but, for a time their, it was really nice to just write something - to have some creativity flowing through me. I have only the vaguest idea of where this material will fit into an eventual story. That doesn't matter to me though. These things can be worked out later.
As I predicted, the pointy end of necessary human interaction is beginning to make itself felt and it is not encouraging. Of the few trips I've made to my local grocer this week, I've found them to be understanding without having to divulge the circumstances of my situation. Other places have regarded me with confusion, a latent suspicion and unabashed antipathy. One lady at the chemist the other day when I was trying to mouth the word tramadol, came right out and said, rather incredulously, "You can talk you know!"
A predictable ignorance.
The minute you hope for understanding, human nature comes in and shits all over it.
So I'm avoiding going out unless it's absolutely necessary. Soon, sadly, it is going to be necessary. I'm dreading that.
I think I'm done with pop culture. Looking through my social network feed this week, I've seen a number of spot fires raging around controversies within the Marvel and Star Wars universes and they are just so hack. Something about Captain America being a Nazi now and, shock horror, the forthcoming Rogue One film has to undergo some reshoots - like that never happens.
The pretentiousness of these hyper fans is really difficult to cope with and I feel as though there is an expectation on the part of some of them to engage in a war to justify some sort of defense of an ideology. It's fucking fiction! It's not key to human survival. Their consistent argument is that "my fandom is bigger than your fandom so your opinion has no validity!" I've encountered this personally in just the past week. It is confronting.
It's indicative to me that fandom is essentially broken and that maybe it is time to abandon certain franchises - *cough* Marvel *cough* that have already been twisted up in so many knots, the ability to ret conn them is virtually useless.
Further, I find that fans in my own beloved franchise have hitched themselves to it in sych a way that they have begun identifying themselves as "Star Wars" celebrities. That, because they flaunt their fandom as though it's some kind of penis symbol, they have assumed the right to be intertwined with the universe - almost as if they were in the fucking films themselves. It is annoying. Infuriating even.
I am trying to pay attention to the Federal Election campaign here currently because I like to think of myself as a responsible civic citizen and I want to take my vote seriously. But, I can't make sense of any of the arguments being put forward by the participating political parties. It's becoming lost in confusion and slogans. The only things the nation seems to have been talking about is the economy, superannuation, tax and jobs. Nothing about the arts. Nothing about social justice issues. Nothing about climate. We are a nation obsessed with money and the problems we face as a nation going forward require more than just money to address them.
But then I'm lost again.
Anyway, I have gone off on a major tangent. But it is illustrative of where my mind is at right now. I am unable to focus on anything for more than a short period of time before I am quickly distracted - then disinterested.
And I sit and look out the window.
There's a toilet roll tube on the top of the fence paling.
DFA.
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Monday, May 23, 2016
The Snore Of Destiny Part Trois.
As I write this, I'm at a rather low ebb.
A few weeks ago, as regular readers may recall, I underwent surgery on my throat to address an issue I was having with swallowing and choking - as well as an annoying snore. Throughout the course of investigation, it actually turned out to be a more serious issue than I had anticipated, involving the paralysis of one side of my vocal cords. You can recap on the short history here and here.
The objective of the surgery was to create an area of scar tissue that would have the effect splinting my airway open so that it wouldn't flop inwards, particularly when I sleep and thus cause the snore. It was also going to address the problems I've been having with my swallowing which has, in a word, become scarily dysfunctional.
To cut a long story short, that surgery did not have the outcome we were hoping for.
It didn't work.
My swallowing remains dysfunctional and the snore wasn't neutralized. In fact, if anything, it's worse.
I have tried to cajole myself along in the hope that it would all settle down, and once the healing process had run its course, all would be well. But it didn't turn out that way.
So last week, after visiting my surgeon, I had to make a decision.
I was presented with the option of returning to hospital and having a dual procedure that involves removing some of the tissue around my palate. This includes the uvula - that dangling, tear drop shaped piece of flesh that hangs down from the roof of the mouth and swings back and forth. The effect of this palatal flap surgery will be that it will open that section of the airway up and reduce amount of negative pressure that can be exerted on it when I sleep. Simply put, it won't vibrate and therefore I won't snore.
The second part of the procedure is the trickier proposition. It involves going back to the area of my vocal cords that has been affected by the paralysed nerve supplying that region of my throat and removing the bone that anchors my right vocal cord. This is called the arytenoid bone. By removing it and applying the laser to that area of the throat, it will widen the airway as well as strengthen it by deliberately forming scar tissue. It will prevent food and fluid from entering that area of my airway that was sneaking in underneath the epiglottis. That's the flap of tissue that closes over my airway during swallowing and prevents food and fluid from falling into my airway.
This is happening this week - this Friday.
The trade off?
My voice.
I have to face the fact that this surgery will have a profound and permanent effect on my voice and my ability to speak.
It has come to that because of the dysfunctional nerve that supplies my voice box. It won't recover from the viral neuritis that has affected it and so, what is being done now amounts to damage control. And I've chosen this route because - basically - I don't want to choke to death in my sleep because of some small fragments of food and fluid that has snuck into my airway.
I will require therapy afterwards to kinda retrain my throat and the muscles in it to adapt to this more extensive surgery. So I expect my recovery to be a lot more complicated.
But to sacrifice my speech...
Our voice is everything. It is a key part of who we are and without it, how are we to express ourselves?
I've been thinking a lot about this over the past week. Of course, expression and communication in this written or text form is so much a part of who I am & so I don't doubt that I will continue to express myself in this fashion.
But, expression and communication is much more than simply words on a page.
It's conversation. It's interaction with others. It's expressing ideas. It's singing shitty pop songs in a moment of abandon - either alone or in the presence of others. It's talking on the phone to loved ones far away.
It's reading stories to my children.
I've been thinking about that one a lot. I remember a promise I may to my daughter recently that I would re-read to her The Guernsey Literary & Potato Peel Pie Society. I used to read it to her when she was first born as a way of getting her used to my voice. She always loved hearing me recount that.
What am I going to be without my voice?
I'm scared.
...Friday.
DFA.
A few weeks ago, as regular readers may recall, I underwent surgery on my throat to address an issue I was having with swallowing and choking - as well as an annoying snore. Throughout the course of investigation, it actually turned out to be a more serious issue than I had anticipated, involving the paralysis of one side of my vocal cords. You can recap on the short history here and here.
The objective of the surgery was to create an area of scar tissue that would have the effect splinting my airway open so that it wouldn't flop inwards, particularly when I sleep and thus cause the snore. It was also going to address the problems I've been having with my swallowing which has, in a word, become scarily dysfunctional.
To cut a long story short, that surgery did not have the outcome we were hoping for.
It didn't work.
My swallowing remains dysfunctional and the snore wasn't neutralized. In fact, if anything, it's worse.
I have tried to cajole myself along in the hope that it would all settle down, and once the healing process had run its course, all would be well. But it didn't turn out that way.
So last week, after visiting my surgeon, I had to make a decision.
I was presented with the option of returning to hospital and having a dual procedure that involves removing some of the tissue around my palate. This includes the uvula - that dangling, tear drop shaped piece of flesh that hangs down from the roof of the mouth and swings back and forth. The effect of this palatal flap surgery will be that it will open that section of the airway up and reduce amount of negative pressure that can be exerted on it when I sleep. Simply put, it won't vibrate and therefore I won't snore.
The second part of the procedure is the trickier proposition. It involves going back to the area of my vocal cords that has been affected by the paralysed nerve supplying that region of my throat and removing the bone that anchors my right vocal cord. This is called the arytenoid bone. By removing it and applying the laser to that area of the throat, it will widen the airway as well as strengthen it by deliberately forming scar tissue. It will prevent food and fluid from entering that area of my airway that was sneaking in underneath the epiglottis. That's the flap of tissue that closes over my airway during swallowing and prevents food and fluid from falling into my airway.
This is happening this week - this Friday.
The trade off?
My voice.
I have to face the fact that this surgery will have a profound and permanent effect on my voice and my ability to speak.
It has come to that because of the dysfunctional nerve that supplies my voice box. It won't recover from the viral neuritis that has affected it and so, what is being done now amounts to damage control. And I've chosen this route because - basically - I don't want to choke to death in my sleep because of some small fragments of food and fluid that has snuck into my airway.
I will require therapy afterwards to kinda retrain my throat and the muscles in it to adapt to this more extensive surgery. So I expect my recovery to be a lot more complicated.
But to sacrifice my speech...
Our voice is everything. It is a key part of who we are and without it, how are we to express ourselves?
I've been thinking a lot about this over the past week. Of course, expression and communication in this written or text form is so much a part of who I am & so I don't doubt that I will continue to express myself in this fashion.
But, expression and communication is much more than simply words on a page.
It's conversation. It's interaction with others. It's expressing ideas. It's singing shitty pop songs in a moment of abandon - either alone or in the presence of others. It's talking on the phone to loved ones far away.
It's reading stories to my children.
I've been thinking about that one a lot. I remember a promise I may to my daughter recently that I would re-read to her The Guernsey Literary & Potato Peel Pie Society. I used to read it to her when she was first born as a way of getting her used to my voice. She always loved hearing me recount that.
What am I going to be without my voice?
I'm scared.
...Friday.
DFA.
Labels:
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Wednesday, March 16, 2016
The Snore Of Destiny - Part Deux.
It's quite a thing to be travelling along, living your life and dealing with the mundane problems of life and then, suddenly, be forced into a sudden left turn that, literally, shakes shit up.
So, remember that time when I was talking to you about a little problem I had with snoring? You know - when I'd resorted to a handful of "home remedies" in the hope that I could stop this throaty rumble that had people running from me as if I was the xenomorph from the Alien film series?
Well...it turns out that there is a reason for this snore - and it is one that I hadn't anticipated. At all.
I won't go into a long winded recap of the whole snore-fest. You can click through to read my original post and the rather screwy lengths I'd gone to try and stop it.
After we returned from our family holiday on Kangaroo Island, I'd resolved to give this thing proper medical attention and I went to see my G.P. with the intention of nipping this thing in the bud right away. After examining me and determining that there was no obvious reason for me to suddenly have begun snoring, my GP and I decided to refer me to an ear, nose and throat surgeon. Because I'm *in the business*, as it were, I know a number of fine surgeons in this field. An appointment was duly made.
Upon visiting the ENT surgeon and having the somewhat wierd experience of a camera being threaded down the back of my throat right there in his rooms, a rather alarming discovery was made. It turns out that my right vocal cord is paralysed - specifically, the arytenoid cartilage that anchors the vocal cord to the result is that during things like speech, breathing or the act of swallowing, the right side of my throat is collapsing inwards whenever the cords come together so that they don't close up properly.
In my discussions with both the GP and the ENT surgeon, a couple of things were happening in addition to the snoring that I'd kind of disregarded but were now, with the advent of all this, things that I should have paid more attention to. Over the past few months I'd noticed, on occasion, that whenever I engaged in exercise I would, after a while, find it difficult to breathe and in addition to that, my breathing had become quite noisy. I was producing a stridor. After exercise, I'd noticed that I had the feeling of a lump in my throat without any real explanation. It was uncomfortable but I'd gotten used to it and therefore dismissed it.
And, very occasionally, I'd noticed that I have struggled with swallowing - whereby I have actually choked on small morsels of food that would otherwise be considered innocuous. There have been a few instances of this that have garnered wierd stares and chuckles from my family but they didn't occur so often that we'd conisdered anything untoward about them. All these symptoms have gotten progressively worse in the last month or so and they've been harder to ignore.
So, on the day that I'm sitting in the surgeon's rooms and we're discussing a paralysed vocal cord, two things came up as causators for it - the first being a viral neuritis leading to an inflammation of the nerve that supplies the right side of my vocal cords. The cause for this is generally sheeted home to a viral infection which can be something as general as a flu.
The other possibility was a lesion or tumour.
Alarm bells sounded in my head on that one as I recalled memories of my experience of the spinal cord tumour that disrupted so much of my adolesence. Whilst I'd been told that the chances of me having another tumour like the one I'd had in my spinal cord was remote, there was always a slight possibility there could be another schwanomma lurking around inside me.
In light of this, it was decided that I should undergo two tests to bed down what we were dealing with - a sleep study to monitor the severity of my snore and its affect on my sleep and an MRI scan of my neck and chest to rule out the possibililty of a new tumour growing on the cranial nerve.
If you've ever had an MRI, you'll know that it is, at best, a disconcerting experience. You are essentially placed inside a tunnel that isn't much wider than the average person from shoulder to shoulder. It is an uncomfortable and claustrophobic environment and moving inside the tunnel is not an option. Furthermore, a series of huge magnets revolve around you that create a noise unlike anything you've ever heard. It's loud and it's a little scary.
For my scan, I had the additional *delight* of having my head and neck encased in a rather medieval cage, securing me in such a way that even subtle movements of my head were impossible. Scratching my nose was out of the question. For 45 minutes I was inside this machine, completely helpless and at the mercy of noise that would make Darth Vader quiver.
The sleep study was a world away from that experience and I was able to complete it at home with a minimum of fuss. It's not really worth mentioning to be honest, but here's a nice picture.
The week long wait following the scan passed in a blur and I was pretty withdrawn for much of the time. The thought of possibly having a tumour - another tumour - was breath taking. Recalling those memories as a kid, going through serious surgery was unpleasant to say the least and it was all I could to keep myself from descending into panic.
Fortunately, the MRI was clear of any sign of a tumour. My relief at having dodged that bullet cannot be understated and I almost had an episode of urinary incontinence in the surgeon's rooms. The scan was able to visualize the defect in my vocal cord and noted the swelling caused by the snore and the general irritation of the tissues in my throat. The sleep study cearly showed that the snore accompanying my sleep state was significant though my overall sleep was rated - surprisingly - pretty decently.
So what's the next step?
Well, in a few weeks time, I will be admitted to hospital to have a more thorough study of my throat known as a nasoendoscopy. During that procedure, I'll be anesthetized and the surgeon will examine how the defect with my vocal cord causes my snoring. He also intends to examine my throat further down, to rule out any other causes or problems with my throat that might be contributing to all of this. The bigger part of the surgery, the part that I'm the most nervous about, will involve the surgeon applying a laser to an area of my throat adjacent to the vocal cord. He will, literally, burn it, creating an area of scarring that will, hopefully, prevent the vocal cord from collapsing in, causing the snore and the asymmetrical airflow over my cords that has caused so much trouble for me over the past few months. It will be a little painful and I may have some temporary difficulties with speech and swallowing but the snore will be gone and my wife will want to share the same bed with me again so that's gotta be a good thing right!???
This was a left turn I didn't expect to be taking and I certainly didn't expect that a snore would have a decidedly more complex root cause as mine does.
I get to be a patient. As a clinician - that's going to be a *fun* experience.
You know what they say about nurses and doctors making the worst patients...
DFA.
So, remember that time when I was talking to you about a little problem I had with snoring? You know - when I'd resorted to a handful of "home remedies" in the hope that I could stop this throaty rumble that had people running from me as if I was the xenomorph from the Alien film series?
Well...it turns out that there is a reason for this snore - and it is one that I hadn't anticipated. At all.
I won't go into a long winded recap of the whole snore-fest. You can click through to read my original post and the rather screwy lengths I'd gone to try and stop it.
After we returned from our family holiday on Kangaroo Island, I'd resolved to give this thing proper medical attention and I went to see my G.P. with the intention of nipping this thing in the bud right away. After examining me and determining that there was no obvious reason for me to suddenly have begun snoring, my GP and I decided to refer me to an ear, nose and throat surgeon. Because I'm *in the business*, as it were, I know a number of fine surgeons in this field. An appointment was duly made.
Upon visiting the ENT surgeon and having the somewhat wierd experience of a camera being threaded down the back of my throat right there in his rooms, a rather alarming discovery was made. It turns out that my right vocal cord is paralysed - specifically, the arytenoid cartilage that anchors the vocal cord to the result is that during things like speech, breathing or the act of swallowing, the right side of my throat is collapsing inwards whenever the cords come together so that they don't close up properly.
image credit: Mayo Clinic.
In my discussions with both the GP and the ENT surgeon, a couple of things were happening in addition to the snoring that I'd kind of disregarded but were now, with the advent of all this, things that I should have paid more attention to. Over the past few months I'd noticed, on occasion, that whenever I engaged in exercise I would, after a while, find it difficult to breathe and in addition to that, my breathing had become quite noisy. I was producing a stridor. After exercise, I'd noticed that I had the feeling of a lump in my throat without any real explanation. It was uncomfortable but I'd gotten used to it and therefore dismissed it.
And, very occasionally, I'd noticed that I have struggled with swallowing - whereby I have actually choked on small morsels of food that would otherwise be considered innocuous. There have been a few instances of this that have garnered wierd stares and chuckles from my family but they didn't occur so often that we'd conisdered anything untoward about them. All these symptoms have gotten progressively worse in the last month or so and they've been harder to ignore.
So, on the day that I'm sitting in the surgeon's rooms and we're discussing a paralysed vocal cord, two things came up as causators for it - the first being a viral neuritis leading to an inflammation of the nerve that supplies the right side of my vocal cords. The cause for this is generally sheeted home to a viral infection which can be something as general as a flu.
The other possibility was a lesion or tumour.
Alarm bells sounded in my head on that one as I recalled memories of my experience of the spinal cord tumour that disrupted so much of my adolesence. Whilst I'd been told that the chances of me having another tumour like the one I'd had in my spinal cord was remote, there was always a slight possibility there could be another schwanomma lurking around inside me.
In light of this, it was decided that I should undergo two tests to bed down what we were dealing with - a sleep study to monitor the severity of my snore and its affect on my sleep and an MRI scan of my neck and chest to rule out the possibililty of a new tumour growing on the cranial nerve.
image credit: Auburn University.
If you've ever had an MRI, you'll know that it is, at best, a disconcerting experience. You are essentially placed inside a tunnel that isn't much wider than the average person from shoulder to shoulder. It is an uncomfortable and claustrophobic environment and moving inside the tunnel is not an option. Furthermore, a series of huge magnets revolve around you that create a noise unlike anything you've ever heard. It's loud and it's a little scary.
For my scan, I had the additional *delight* of having my head and neck encased in a rather medieval cage, securing me in such a way that even subtle movements of my head were impossible. Scratching my nose was out of the question. For 45 minutes I was inside this machine, completely helpless and at the mercy of noise that would make Darth Vader quiver.
The sleep study was a world away from that experience and I was able to complete it at home with a minimum of fuss. It's not really worth mentioning to be honest, but here's a nice picture.
The week long wait following the scan passed in a blur and I was pretty withdrawn for much of the time. The thought of possibly having a tumour - another tumour - was breath taking. Recalling those memories as a kid, going through serious surgery was unpleasant to say the least and it was all I could to keep myself from descending into panic.
Fortunately, the MRI was clear of any sign of a tumour. My relief at having dodged that bullet cannot be understated and I almost had an episode of urinary incontinence in the surgeon's rooms. The scan was able to visualize the defect in my vocal cord and noted the swelling caused by the snore and the general irritation of the tissues in my throat. The sleep study cearly showed that the snore accompanying my sleep state was significant though my overall sleep was rated - surprisingly - pretty decently.
So what's the next step?
Well, in a few weeks time, I will be admitted to hospital to have a more thorough study of my throat known as a nasoendoscopy. During that procedure, I'll be anesthetized and the surgeon will examine how the defect with my vocal cord causes my snoring. He also intends to examine my throat further down, to rule out any other causes or problems with my throat that might be contributing to all of this. The bigger part of the surgery, the part that I'm the most nervous about, will involve the surgeon applying a laser to an area of my throat adjacent to the vocal cord. He will, literally, burn it, creating an area of scarring that will, hopefully, prevent the vocal cord from collapsing in, causing the snore and the asymmetrical airflow over my cords that has caused so much trouble for me over the past few months. It will be a little painful and I may have some temporary difficulties with speech and swallowing but the snore will be gone and my wife will want to share the same bed with me again so that's gotta be a good thing right!???
This was a left turn I didn't expect to be taking and I certainly didn't expect that a snore would have a decidedly more complex root cause as mine does.
I get to be a patient. As a clinician - that's going to be a *fun* experience.
You know what they say about nurses and doctors making the worst patients...
DFA.
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