Star Wars is more than just an entertainment franchise - that much is clear. It's more than a popular cultural phenomenon that has stood the test of time. Because of its longevity, Star Wars has come to mean many different things to many different people.
Here's what it means to me...
In 1999, during the run up to the release of Episode 1, I was a junior Nurse at a private hospital in Adelaide.
In late April of that year, I encountered a patient - a young man named David - who was terminally ill. He'd been diagnosed with an aggressive cancer just a few months before and he'd been given only weeks to live.
It was a rainy Friday night when I first met him. He lay in his bed, grossly swollen with fluid, completely bald and barely able to lift his head from the pillow. He was surrounded by Star Wars toys and, of course, my face lit up at all of the cool things he had. Alot of it was the mid 90's Hasbro merch - a couple of light up light sabers, a big arsed Millennium Falcon, some 12 inch figs and of course, those beefed up 3 & 3/4 figs that got most of us back into collecting after that long hiatus.
Suffice to say, we hit it off right away and I was encouraged by the fact that he too, had found something of a kindred spirit in me. His smile said it all.
Over the course of the next couple of weeks, I made sure that I was able to look after David when I was on duty and I'd bring in items from my own vintage collection for him to check out and play around with. We'd talk the films and the then EU books and of course, we'd toss theories back and forth about the possible story that Episode 1 would present. At one time, during his admission, there was a slight glimmer of hope that the medical and nursing team might be able to get David well enough that he could attend the premiere of the film in June, but it became clear that his condition was deteriorating quickly. He wouldn't get his wish.
Then I discovered something in the course of our conversations that created an opportunity to do the next best thing.
David had never seen the Holiday Special.
He'd heard about it but assumed that it was an urban myth - the kind you'd hear about in those early days of the internet when message boards were still a big thing and the web hadn't quite saturated our consciousness.
I had (and still have) a bootleg copy of the Holiday Special that I'd tracked down on one of the early iterations of eBay. When I told David this, the excitement in his dying eyes was as bright as the twin suns and so, I duly arranged for a special night where we would screen the Special on his TV, in his hospital room.
I came in on a Saturday night - my night off. His family had gotten in on the fun and we had a spread of snacks in his room, all his Star Wars kit on display and David dressed in his Star Wars jimmy-jams.
And we screened the Holiday Special. It was still the most wonderfully terrible piece of Star Wars even committed to celluloid (or DVD as it were), but it didn't matter. For David, for his family and the nurses and doctors who came in and out over the course of that evening, it was the best thing we had ever seen. So much laughter and gritting of teeth the worst bits. Cheers and tears at little Lumpy and fist pumps at Han and Chewie outrunning the Imperials on their way to Kashyyyk.
For David, it was the most wonderful thing ever. Star Wars that he had never seen.
I went to the midnight screening of Episode 1, having stood in line for hours with hundreds of other excited fans at Marion's GU Megaplex. Just as we were about to go in, I got a message from one of my colleagues at the hospital. David had died, literally half an hour before midnight.
I went to David's funeral a few days later. He was buried in his Star Wars jimmy-jams, his coffin was draped in a Star Wars beach towel and his green and red light sabers were crossed over the centre.
His Mum told me afterwards that they would never forget that last Saturday night. Screening the Holiday Special for him had given both he and them one last occasion of joy together.
That's what Star Wars means to me. Because of it, I was able to connect with someone during their darkest hour and share in something they could find joy in before their end.
Star Wars brings people together. It creates memories that last forever.
DFA.
Showing posts with label Terminal Illness. Show all posts
Showing posts with label Terminal Illness. Show all posts
Friday, March 31, 2017
Monday, July 27, 2015
The Wars That Saves Lives - A Look At My Saga.
By now, I'm sure most of you would be aware that it is shaping up to be huge year for Star Wars fandom. We've just seen the conclusion to season 1 of the animated series Star Wars: Rebels and we're about to embark on season 2 in the American fall. We've seen the hugely successful 4 day convention extravaganza Star Wars Celebration in California and a big Star Wars presence at the recent San Diego Comic Con. And, unless you've been living under a rock, you will know that come December, Star Wars will return to the big screen in the highly anticipated first entry in the sequel trilogy The Force Awakens. For a franchise that was considered to be done and dusted just 10 years ago after the final film in the prequel series, it is quite a momentous change in fortunes for George Lucas' genre defining franchise.
Now, those of you who know me really well, know that I'm a massive Star Wars fan and, for me, it feels like there has been no better time to be a Star Wars fan. In the past year alone, I've been able connect with a number of like fans around the world and I've loved being able to rap over something that is so mutually loved. Central among these new connections, has been an Australian documentary film maker named Adam Harris.
Adam came onto my radar last year when he launched a Kickstarter campaign titled "My Saga" in which he sought backing for a documentary film project. The project description immediately caught my eye.
"My Saga - A Star Wars Documentary is a story that will show for one person that Star Wars not only changed their life...it saved it."
The initial campaign was wildly successful and the production has since gone from strength to strength as Adam as his small team of film makers work tirelessly to bring the documentary to fruition.
And indeed we will see it with the announcement, earlier this year, that Adam Harris' film will be released internationally in 2016.
"My Saga follows the journey of Adam Harris, a husband, father and Star Wars fan. Four years ago, the discovery of a brain tumour and a serious health scare caused Adam to re-evaluate his priorities and follow his dreams.
Star Wars has always been a constant source of joy, comfort and even safety in Adam’s life. When it became apparent his children shared the same deep love and affection for Star Wars, Adam felt compelled to discover just what it is about Star Wars that creates such devoted fans that span across multiple generations, all around the world.
With his son Jack by his side, Adam has spoken with fans, enthusiasts, die-hards as well as cast and crew members from the films. All the while discovering what Star Wars means to him, and the impact it’s had on making him the husband and father he is today.
Every fan has their own saga. This is one."
The first teaser trailer for the film took the internet by storm when it was released onto YouTube and Adam has increasingly captured the attention of media outlets both here in Australia and overseas. Adam was featured in a number of interviews by official media covering the recent Star Wars: Celebration in California and he has received support from major Star Wars identities.
In the whirlwind procession of Star Wars and Star Wars related media that will be coming our way over the next 12 months, My Saga promises to be a lovingly constructed journey of one man's Star Wars fandom and will be on my own personal list of must see films in 2016.
Connect with Adam Harris here.
Connect with My Saga here.
Tweet with My Saga here.
Visit the official site here.
DFA.
Now, those of you who know me really well, know that I'm a massive Star Wars fan and, for me, it feels like there has been no better time to be a Star Wars fan. In the past year alone, I've been able connect with a number of like fans around the world and I've loved being able to rap over something that is so mutually loved. Central among these new connections, has been an Australian documentary film maker named Adam Harris.
(image credit: My Saga.)
Adam came onto my radar last year when he launched a Kickstarter campaign titled "My Saga" in which he sought backing for a documentary film project. The project description immediately caught my eye.
"My Saga - A Star Wars Documentary is a story that will show for one person that Star Wars not only changed their life...it saved it."
(image credit: My Saga.)
The initial campaign was wildly successful and the production has since gone from strength to strength as Adam as his small team of film makers work tirelessly to bring the documentary to fruition.
And indeed we will see it with the announcement, earlier this year, that Adam Harris' film will be released internationally in 2016.
"My Saga follows the journey of Adam Harris, a husband, father and Star Wars fan. Four years ago, the discovery of a brain tumour and a serious health scare caused Adam to re-evaluate his priorities and follow his dreams.
Star Wars has always been a constant source of joy, comfort and even safety in Adam’s life. When it became apparent his children shared the same deep love and affection for Star Wars, Adam felt compelled to discover just what it is about Star Wars that creates such devoted fans that span across multiple generations, all around the world.
With his son Jack by his side, Adam has spoken with fans, enthusiasts, die-hards as well as cast and crew members from the films. All the while discovering what Star Wars means to him, and the impact it’s had on making him the husband and father he is today.
Every fan has their own saga. This is one."
The first teaser trailer for the film took the internet by storm when it was released onto YouTube and Adam has increasingly captured the attention of media outlets both here in Australia and overseas. Adam was featured in a number of interviews by official media covering the recent Star Wars: Celebration in California and he has received support from major Star Wars identities.
(image credit: Adam Harris.)
In the whirlwind procession of Star Wars and Star Wars related media that will be coming our way over the next 12 months, My Saga promises to be a lovingly constructed journey of one man's Star Wars fandom and will be on my own personal list of must see films in 2016.
Connect with Adam Harris here.
Connect with My Saga here.
Tweet with My Saga here.
Visit the official site here.
DFA.
Thursday, March 3, 2011
The Fourteenth Year.
I can still vividly remember the first day I met him.
My wife and I - then young lovers - were spending one of those particularly romantic days together, when we were first courting. We had just moved in together and were out and about shopping for things to make our home "ours". It was an extremely carefree and gushy time so bare with me here. We saw everything through rose colored glasses. We couldn't stop kissing or smooching and I don't think we spent many moments not holding hands. It was young love writ large.
I don't think we had actually discussed the idea of "expanding" our little household, although it had come up casually in conversation in one form or another at different times. So full of limerance as we were, when the opportunity presented itself, it was an opportunity that was too cute to pass up.
We were in the shopping mall, armed with homeware purchases and grocery items, strolling towards the exit, when we heard him. It was unmistakable - a loud, high pitched "yap, yap, yapping" My then serioso looked at me with those eyes that said "Awwwww!"
The pet store was just ahead of us, a small store front that was a kind of 'blink-you'll-miss-it' affair. That was where the yapping was coming from. At the time, I was the more reluctant of the two of us. I mean, we had just moved in together and were still finding our feet with one another. But I couldn't resist her eyes. They were one of her most attractive features.
I was lead towards the the pet store and inside, it was a cramped space, occupied mostly by bird cages and fish tanks. I remember looking around for the cat and dog cages, thinking 'are we in the right place?' But the yapping started up once more and I knew, we couldn't be any place else.
So we find our way to the very back of the store and found the source of the noise.
There on a wall occupied by cages of cats and dogs and other mammals, at eye level, was one particular puppy. It could only have been him.
He was six weeks old. He was born in June. A small bundle of black and white fur, with mottled socks on his front legs and overtly tall, pointed ears. His eyes were huge, almost too big for his face. And, as we approached the glass he instantly stopped his ultimate fighting contest with the ball of newspaper, sat down on his hind legs, wagged his tail furiously and looked straight at us. He yapped twice then got up, turned his rear end to the glass and promptly shat on it, a liquid stream of poo that made me flinch reflexively. My rose colored glasses cracked a little.
I noticed then that his enclosure was kinda filthy with poo and under normal circumstances I probably would have baulked right away. But this observation was almost completely usurped by the fact that the puppy occupying the enclosure was so damned cute. Even though we hadn't even made a decision yet, I knew we weren't going to be leaving the store without him.
He was six weeks old. He was a cross breed, a mixture of Border Collie and that quintessentially Australian cattle dog - the Blue Heeler. We were told he had been born in a litter of pups from the Southern Vailes of South Australia, down among the wine barrels of the McLaren Vale Wine Region.
My then serioso was sold on him the moment she laid eyes on him. I, although a little concerned about the amount of shit he had produced in those first few minutes, was reassured after the pet shop owner told me that he had just finished a course of routine antibiotics which was the cause of his "squirts".
Cut forward to us driving home from the mall. We'd purchased a bottle of Bleasedale Caberbet Sauvignon to celebrate...it seemed appropriate.
...On my serioso's lap, was a large cardboard box. The pup lay sleeping inside, evidently worn out after the whole ultimate fighting thing and the subsequent liberation from the two feet by four feet enclosure. Though we had no idea of the concept, we felt complete. Niether of us could take our eyes off the box. We were hoping he would wake up so we could interact with him.
"What shall we name him?" my serioso asked.
We ran through a bunch of names, from the usual, dumb pet names to the more sensible ones. None of them seemed to 'fit' however. This little pup seemed to possess something special - something different. He wasn't an average pooch at all. As we mulled it over, the pup awoke to the sound of our voices and popped his head out of the top of the box, yawning generously.
My serioso gave him a loving soft nose rub.
"What do you think of Sam?" I suggested, thinking that he looked noble enough to be a Sam.
"Hmmm" my serioso mused, a note of hesitation running through her voice.
"Okay..." I continued. "How about...Simon?"
We both looked at our new puppy. There was a moment of quiet between us, then my serioso nodded.
"Simon...that's it. Simon"
It fit.
Simon from then on, has become an inextricable part of my life. I regard him as, quite possibly, my best friend. We have grown up together, an unshakeable bond has grown between us.
Simon has been there during the best parts of my life - when my serioso and I were married. I actually wanted him to wear a golden bow tie and be a part of the wedding but I was talked out of it - probably for the best. The morning walks my wife and I used to go on religiously when we lived in Adelaide Hills - Simon was there. I'm sure he woulda put his own leash on if he could. I mean, he would actually bring it to us so we could put it on him. Whenevee the very word 'Walk' was uttered he would bolt straight for the leash, hanging on a hook outside. And he wouldn't so much walk along with us as he would attempt to pull our arms out of our sockets. Thank god we could let him off occasionally. Simon was particularly spoilt - by myself. He always got one of the sofas to himself and especially loved our movie nights, especially when we got our first home theater. He is an avowed Star Wars fan - like his 'daddy' - although I think he secretly leans a little more towards the works of Tarrantino, especially recently. Simon loves popcorn - MAJORLY - and we would usually end up surrendering at least half of a bowl of hot buttered heaven to him alone. He loved the drives and the day trips we used to go on and he always had his favored position in the back seat. No one would dare get in the way of his spot on the back seat. When my wife and I moved to the city, to our new house, he didn't once fret or struggle with adjusting to the new environment. He is and always has been adaptable.
A number of times, Simon has flirted with disaster. Chewing the cords of my Playstation controllers aside, Simon once brought down some loose house bricks on one of his front paws in an attempt to get through the side gate and he did a pretty decent job of breaking it. For weeks after, he sported a bright blue plaster which he wore, reluctantly. He hobbled around like a senior citizen and made it known that blue is definitely not his color. But the paw healed and he didn't suffer any long term after effects as a result of his injury. We once brought him home from the kennel we used to favor after an overseas holiday to find a really nasty hole in his equivalent of his groin. The wound must have been sustained from him being impaled by something sharp and it became badly infected. Subsequently, Simon became very ill and it was touch and go for some time. Again, he pulled through as if nothing had happened. We never took him back to that kennel.
Simon has also been there during the worst parts of my life - my darkest hours. When my marriage broke down and I was, literally, totally alone in this city that is far from the place where I grew up, Simon was my confidant, my one unwavering support, my only friend. He was with me when I had to move all of my furniture out of the house and into a shed that would become my home for 6 months while I built a new house. There were many of those trips at really odd hours to move my life out and Simon subtly moved from the back seat upto the front passenger seat to keep me company. For a time, my wife and I had joint custody of Simon and we made an honest attempt at sharing him. But it was doing us no good. In the ensuing train wreck that inevitably happens with a marriage breakdown, I feared I would lose Simon. And I was prepared to give him up too if it meant that he would be settled and happy. Fortunately (and I was to be forever grateful for this) my wife decided to surrender him to me.
For a time it was just Simon and me. And we were comfortable - if a little homeless. I battled depression - severe depression - and Simon was there to help me pick up the pieces. Much to my shame he did a lot of picking up after me but never once did he turn away. Eventually, I met someone new and with Emily came new love and new possibilities. The house was built - back in the Adelaide Hills that we both loved so much. Simon was kitted out with a brand new kennel and our new life began. There were new places to explore, new roads to walk and new air to breathe.
With the passing of years, I sometimes wondered how long would Simon be around for. I mean, I know dogs have a different lifespan to humans and inevitably, I knew time would catch up to Simon. But I was amazed - constantly - watching him as he passed through his tenth and eleventh and twelfth years of life effortlessly. He witnessed the birth of our first child and took to Xavier without difficulty at all. In fact, he seemed tailor made for children. When Lucy was born, Simon seemed to be just as excited when we brought her home as Xavy was. He has watched them both grow and they have have grown to love him as a part of the family. Simon has slowed down somewhat. Arthritis has collected in his hips and it's made things a little more challenging for him to do, but it hasn't prevented him from enjoying an active life and playing with the children in the garden.
Simon has given so much joy but perhaps the most rewarding thing Simon has given me was the basis for an in-story characterization of him in my novel "The Hambledown Dream". During the months I spent writing the novel, Simon was with me a lot of time, sitting on the floor of my little den, snoring away as I wrote on rainy afternoons or out on the patio with a glass of wine and the bird song to keep us company when the sun was shining. It was somewhat inevitable that I would feature him in the story. I didn't count on his role being such a popular one. People who have read the novel have told me how much they loved Simon's appearence in it and how they loved his contribution to the emotional finale. He really is that wonderful character. He has such personality and a wisdom that he conveys through his eyes and his big smile.
Last week, we received some fairly shattering news.
For the past couple of months, Simon has been visibly struggling with walking and, initially, we thought it was an exacerbation of his arthritis. It's been really distressing for him - given that he has been such an active dog - and it's been distressing for us, not really.knowing what to do to make it better for him. Things however, took an alarming turn a couple of weeks ago when, as if from no-where, a large lump developed on his hind leg which seemed to irritate the hell out of him. Alarms bells went off and we promptly took him to the vet for an examination.
Simon has been diagnosed with cancer.
Without going into the specifics of the type of cancer that he has - it's a particularly nasty one - we've been told that the prognosis is poor and that his remaining time here with us is uncertain. Painful as the decision was, we've decided that treatment is not an option. There are too many risks for an older dog like Simon and the outcome would most likely be the same. For now, we've opted to treat him conservatively - to clear up the infection in his leg, manage the tumor, treat his arthritis with steroids and make him as comfortable as possible.
Our little family has been rocked to it's core. Xavier has some basic idea of the significance of the diagnosis, while Lucy is far too young to comprehend it. Both Emily and I are struggling to comprehend it ourselves. Suffice to say we are devastated.
For now, the steroids have actually helped Simon a lot and he has regained some of that characteristic spark that so endears him to everyone. He seems more comfortable and moves much more easily. Just today, he was playing soccer with Xavy and I in the garden and he was mixing it up quite skilfully - if a little gingerly. He hasn't lost his appetite and still eats like a horse - the steroids no doubt have helped that. So long as he has that kind of quality of life, then I am happy.
He will celebrate his fourteenth year of life on June the 26th this year. I don't know yet, if he will make it to that date. After much discussion, anguish, soul searching and tears I've decided that once his quality of life deteriorates significantly, then I will make that one final journey to the vet with him.
Simon has made an indelible mark on my life for a full third of my life. I can't imagine how my life would have been without him in it. I can't imagine how life will be once he is gone.
Simon is my friend.
DFA.
Sunday, November 21, 2010
Memory Palace.
As an avowed Star Wars geek...
...You know - perhaps I shouldn't have started this post with that sentence because, already, I can imagine a good bulk of you groaning and switching off. But stick with me here because this is a good one - I swear.
Anyway...
I have met and interacted with a lot a like minded Star Wars geeks over the years and many of these interactions have been wonderful with a lot of mutual geeking out, talking all things Skywalker, Vader, the Galaxy far, far away and much playing with Kenner/Hasbro figurines...
Still with me?
One of the most significant of these interactions however, was one of those unique experiences that is tinged with a little tragedy. In 1999, which was of course the year Episode One was released into cinemas, I was nursing here in Adelaide and I came across a young cancer patient who was possibly the biggest Star Wars fan I had come across - apart from myself. His name was David and over the course of about 6 weeks in April/May of that year, I spent a lot of hours looking after David.
The writing was on the wall for David.
He was terribly ill, terminally ill as it were and everyone knew that his days were numbered. His room at the hospital was decked out with Star Wars paraphernalia, posters, toys, books. Someone had brought in a TV and video set up so that he could watch the films back to back (this was of course the Original Trilogy on VHS at that time). For a short time, while David was there in the hospital, you could step into his room and disappear into a kind of localized galaxy not so far away.
And of course me, being a well known Star Wars geek amongst my colleagues, found myself (well...I made sure I found myself) allocated to his care most of the time. Which suited us just fine. Most shifts were me and him swapping stories, sharing collectibles and like I said before...just geeking out.
A well understood but not often discussed reality between us was the likelihood that David would not survive to see Episode One and, given his parlous condition in the lead-up to the film's release, it was highly unlikely that we could ever get him into a position where we could get him to the cinema - not that we didn't investigate the possibility mind you.
I could continue the story in words here and now but I'd like to share with you, a short piece of audio that I recorded for the Star Wars internet radio show The Force Cast. I recounted the story during a period where the Kyle Newman directed movie "Fanboys" was going through a pretty rough patch in it's development - precisely because it's own story dealt with a very similar case of someone facing death in the lead-up to the release of Episode One.
It's not a long piece of audio but even now, it says much about all that is good about Star Wars and it's fan base.
Enjoy...
DOWNLOAD .MP3
DFA.
...You know - perhaps I shouldn't have started this post with that sentence because, already, I can imagine a good bulk of you groaning and switching off. But stick with me here because this is a good one - I swear.
Anyway...
I have met and interacted with a lot a like minded Star Wars geeks over the years and many of these interactions have been wonderful with a lot of mutual geeking out, talking all things Skywalker, Vader, the Galaxy far, far away and much playing with Kenner/Hasbro figurines...
Still with me?
One of the most significant of these interactions however, was one of those unique experiences that is tinged with a little tragedy. In 1999, which was of course the year Episode One was released into cinemas, I was nursing here in Adelaide and I came across a young cancer patient who was possibly the biggest Star Wars fan I had come across - apart from myself. His name was David and over the course of about 6 weeks in April/May of that year, I spent a lot of hours looking after David.
The writing was on the wall for David.
He was terribly ill, terminally ill as it were and everyone knew that his days were numbered. His room at the hospital was decked out with Star Wars paraphernalia, posters, toys, books. Someone had brought in a TV and video set up so that he could watch the films back to back (this was of course the Original Trilogy on VHS at that time). For a short time, while David was there in the hospital, you could step into his room and disappear into a kind of localized galaxy not so far away.
And of course me, being a well known Star Wars geek amongst my colleagues, found myself (well...I made sure I found myself) allocated to his care most of the time. Which suited us just fine. Most shifts were me and him swapping stories, sharing collectibles and like I said before...just geeking out.
A well understood but not often discussed reality between us was the likelihood that David would not survive to see Episode One and, given his parlous condition in the lead-up to the film's release, it was highly unlikely that we could ever get him into a position where we could get him to the cinema - not that we didn't investigate the possibility mind you.
I could continue the story in words here and now but I'd like to share with you, a short piece of audio that I recorded for the Star Wars internet radio show The Force Cast. I recounted the story during a period where the Kyle Newman directed movie "Fanboys" was going through a pretty rough patch in it's development - precisely because it's own story dealt with a very similar case of someone facing death in the lead-up to the release of Episode One.
It's not a long piece of audio but even now, it says much about all that is good about Star Wars and it's fan base.
Enjoy...
DOWNLOAD .MP3
DFA.
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